Privacy and Confidentiality Statement

At Rosalind Genetics, we are committed to protecting your personal information and ensuring your privacy and confidentiality in accordance with Australian law, including the Privacy Act 1988 (Cth) and the Australian Privacy Principles (APPs). 

 

What Information We Collect

We may collect and store personal information, including but not limited to:

  • Your name, address, and contact details.
  • Medical and family history information relevant to genetic counselling and testing.
  • Results of genetic tests and other health-related data. 
 

This information is collected directly from you or, with your consent, from healthcare providers, laboratories, or other relevant parties. 

 

How We Use Your Information

The information we collect is used to: 

  • Provide genetic counselling and testing services. 
  • Facilitate communication with laboratories, healthcare providers, and other third parties involved in your care (with your consent). 
  • Comply with legal and regulatory requirements.  
 

We will not use your information for marketing purposes without your explicit consent. 

 

How We Protect Your Information 

Rosalind Genetics takes all reasonable steps to ensure the security of your personal information by:

  • Storing data in secure systems compliant with Australian data protection standards. 
  • Limiting access to authorised personnel only.
  • Using encryption and secure communication channels for the transmission of sensitive data. 

 

Sharing Your Information

We will only share your personal information with third parties under the following circumstances:  

  • With your explicit consent.
  • When required by law, such as in response to a court order or subpoena.
  • To prevent a serious threat to your life, health, or safety, or that of another person.  
 

All third-party service providers, including laboratories, are required to comply with strict privacy and confidentiality standards. 

 

Accessing and Correcting Your Information

You have the right to access and request corrections to your personal information. To do so, please contact us using the details below. We will respond to your request within a reasonable timeframe, as required by the Privacy Act. 

Participation in Ethics-Approved Research

Occasionally, we may invite you to participate in ethics-approved research studies related to genetic testing and counselling.

Participation in research is entirely voluntary, and you are under no obligation to participate.

If you choose to participate, we will provide you with clear information about the research, including the nature of the study, any potential risks or benefits, and how your information will be used.

You can opt out of any research invitation at any time, without affecting the care or services we provide to you. If you decide to participate and later wish to withdraw, you can do so without any negative impact on your relationship with Rosalind Genetics.

 

Retention and Disposal of Information

We retain personal information for as long as it is necessary to provide our services and comply with legal obligations. When no longer required, information is securely destroyed or de-identified in accordance with Australian regulations. 

Complaints and Enquiries

If you have any concerns or complaints about how your personal information has been handled, please contact us. We take privacy concerns seriously and will respond promptly to resolve any issues. If you are not satisfied with our response, you may lodge a complaint with the Office of the Australian Information Commissioner (OAIC).  

Contact Us

For any questions, requests, or concerns about our privacy practices, please contact us at:  

Rosalind Genetics
Email: gene@rosalindgenetics.com
Phone: 1300 042 132
Address: PO Box 3144, Prahran East VIC 3181

This Privacy and Confidentiality Statement is effective as of 1 September 2025 and may be updated periodically to reflect changes in law or our practices.