Paediatric Genetics

Expert support for children with suspected or known genetic conditions.

At Rosalind Genetics, we provide compassionate, evidence-based care for families navigating genetic conditions in infancy and childhood. From developmental concerns to complex diagnoses, our team works closely with you to understand what’s going on and how best to support your child’s health and future.

When should I consider paediatric genetic services?

Sometimes a child’s medical or developmental challenges may be caused by an underlying genetic condition. Genetic assessment can help explain why a condition has occurred, guide treatment or management, and provide clarity for the future – including any implications for siblings or future children.

Our service may be helpful if your child has:

Unexplained developmental delay or intellectual disability

Autism spectrum disorder or behavioural differences

Multiple medical issues across different systems

Unusual physical features or differences in growth

A known or suspected genetic condition

A family history of childhood-onset conditions

What to expect

We take the time to listen and explain. Every consultation is tailored to your child’s specific needs.

1

Referral

Get a referral from your GP to Rosalind Genetics.

2

Consult

Speak to our genetic counselling team about your options in a telehealth consult online.

3

Family History

Discuss your family history and whether testing is appropriate.

4

Genetic Testing

Genetic testing may be recommended, depending on the clinical picture.

5

Results

Receive your results with clear explanations and personalised guidance.

6

Support

Access ongoing support, referrals, and family testing if appropriate.

Please note, in many paediatric cases, an in-person consultation is required. These consultations currently take place in Sydney, with new locations opening soon. Please call us to determine whether an in-person appointment for your child is needed.

1. Get a referral

From your GP, obstetrician, or fertility specialist.

2. Consultation

Meet with one of our genetic counsellors (in person or via telehealth).

3. Family history

Discuss your family history and whether testing is appropriate.

4. Undertake testing

Undertake testing (if needed). We’ll explain what it covers and what results mean.

5. Results

Receive your results with clear guidance and emotional support.

6. Next steps

Plan your next steps with confidence, whatever the outcome.

What kinds of genetic conditions does Rosalind Genetics support?

We assess and support a broad range of conditions in children, including:

  • Developmental disorders (e.g. global developmental delay, intellectual disability)
  • Neurogenetic conditions (e.g. Rett syndrome, fragile X syndrome, epilepsy syndromes)
  • Metabolic or mitochondrial disorders
  • Syndromes involving physical differences or congenital anomalies
  • Genetic causes of behavioural or learning challenges
  • Children with a known genetic diagnosis who need ongoing support

 

Not every child needs testing – and not every test gives a clear answer. But our goal is always to give families the clearest possible picture of what’s going on.

Medicare and costs

Many paediatric genetic services and tests are eligible for Medicare rebates, particularly when there’s a clear clinical need.

We’ll explain any costs upfront and help you understand your options before proceeding.

Why Choose Rosalind?

Rosalind’s paediatric team includes clinical geneticists and counsellors experienced in working with children and families. We understand that receiving a diagnosis – or searching for one – can be a stressful experience. We’re here to guide you with empathy, clarity, and expertise.

We offer:

  • Collaborative, family-centred care
  • Coordination with paediatricians, therapists, and specialists
  • Ongoing support beyond the initial consultation

Frequently Asked Questions

Do I need a referral?

Yes. You’ll need a referral from a GP or specialist to access this genetic testing service.

Not always. We’ll assess your child first and only recommend testing if it’s clinically useful and appropriate.

Most genetic tests are done by a simple blood or saliva sample. In some cases, testing may involve other family members as well.

Sometimes, testing gives a clear answer – other times it helps rule things out or identify areas for monitoring. We’ll talk through all outcomes, and what they mean for your child’s care.

Yes – if a genetic condition is identified, we may recommend testing for parents or siblings to help inform family planning and medical care.

Reach out to us at gene@rosalindgenetics.com or call us on 1300 042 132.